ANA News

A digital infographic titled "2024 In Review" summarizes the achievements of Aniridia North America (ANA) under three categories: Represent, Serve, and Support. Represent: ANA established a Medical Advisory Board, participated in the 7th European Aniridia Conference, and elected a patient representative to the Board of Directors. Serve: ANA presented preliminary results of a Neuropsychology Survey, launched the EYEris Aniridia Registry, and increased their online reach via website, Facebook, and YouTube. Support: ANA published a Patient Overview from the 2023 ANA Symposium, added Spanish-language resources to their website, and expanded their social media presence. At the bottom, ANA's mission is stated: "Represent, serve, and support the North American community of persons affected by aniridia and their families, patient advocacy organizations, and clinicians and scientists." The website aniridiaNA.org is displayed.

2024 Year In Review

Thank you to all who supported and donated to ANA in 2024. Thanks to your support, great things were achieved! The ANA Board of Directors is looking forward to another great year in 2025.

Here is a snapshot of the accomplishments from 2024 complete with links to information as appropriate.

New Member Elected to ANA Board of Directors

ANA’s Board of Directors welcomes new member Michael Schain. Michael was born with sporadic aniridia and has a passion for improving outcomes for people with aniridia. For the past two years, he has served on the ANA Patient and Family Advisory Board. “We are so pleased to have Michael join our team,” said Peter Netland, ANA Board Chair. …

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Focal Point Episode 4: The Aniridic Cornea – An Introduction

Guest: John Freeman, MD Dr. Freeman is Board Certified by the American Board of Ophthalmology and specializes in cataract surgery and corneal disease. Prior to receiving his medical degree, Dr. Freeman received his B.A. in English from Davidson College in North Carolina. Dr. Freeman earned his Medical Degree from the University of Tennessee College of …

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ANA Board Members and Aniridia Europe Board Members together at the EAC.

ANA Participation in the 7th European Aniridia Conference

ANA desires to increase collaboration internationally and serve as a collective voice of North American stakeholders to the international aniridia community.  In pursuit of that vision, representatives from ANA were honored to be invited to and to participate in the 7th European Aniridia Conference, hosted by Aniridia Sweden, together with Linkoping University and Aniridia Europe. The …

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Russian Aniridia Conference

On September 10th, 2024, the Second Congenital Aniridia and the WAGR Spectrum conference for Russian-speaking doctors and families with aniridia took place in Moscow, Russia. The conference was held at the “Crocus-Expo” International Exhibition Center as part of the International Optical Exhibition. 47 doctors and 97 patients and their family members from Russia and the …

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Infographic with title: 2023 In Review and ANA logo Under the "Represent" column are graphics for the following: Formed Patient and Family Advisory Board, Hosted Scientific Symposium, Initiated Professional Outreach Under the "Serve" column, there are graphics for the following: Expanded webinar series, 120 questions, 15 countries, More than 5500 website visits, Launched Research survey Under the "Support" column, there are graphics for the following: Joined Global Genes rare disease organization, Published scientific Overview of the 2021 ANA Symposium, Formalized Collaborative relationships with vision for tomorrow and International WAGR Syndrome Association

2023 In Review & 2024 Strategic Plan

Thank you to all who supported and donated to ANA in 2023. Thanks to your support, great things were achieved! The ANA Board of Directors is looking forward to another great year in 2024.

The infographics below provide a snapshot of the accomplishments in 2023 and highlight some goals set for 2024.

Aniridia & Neuropsychology Survey – FAQs

Thank you for your interest in furthering aniridia research by filling out the Aniridia and Neuropsychology survey. Below are the answers to Frequently Asked Questions about this survey. What is “Neuropsychology?” Neuropsychology is the study of the relationship between behavior, emotion, and the mind and their relationship to the central nervous system (the brain and spinal cord). …

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Logo - Outline of an eye, with ANA in the middle and Aniridia North America underneath

Aniridia North America
106 W. Calendar Ave
Suite 122
LaGrange, IL 60525

Aniridia North America is registered as a 501(c)(3) non-profit organization in the United States.

EIN: 86-2917141

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