Please note: This website includes an accessibility system. Press Control-F11 to adjust the website to people with visual disabilities who are using a screen reader; Press Control-F10 to open an accessibility menu.

ANA News

The image is a promotional flyer for an event hosted by Aniridia North America (ANA). The background features a dark wooden texture with a top-down view of a workspace that includes a silver laptop, a spiral notebook with a pencil, and a pair of glasses. At the top center is the ANA logo, stylized as an eye outline with “ANA” in bold white letters inside and “Aniridia North America” written beneath the lower arc of the eye. Below the logo, the main event information is displayed in white bold text: Title: Focal Point Focus: The Aniridic Cornea – Treatment Host: Janelle Collins Guest: Dr. Albert Cheung On the right side of the image, there is a light blue text box with black text that contains the event date and time: Thursday, April 3 8:30pm EDT

Focal Point Episode 5 – The Aniridic Cornea: Treatment

Guest: Albert Cheung, MD Dr. Albert Cheung is part of the skilled Cornea team at Virginia Eye Consultants in Norfolk, VA. Dr. Cheung joined VEC to provide world-class corneal and cataract care to patients. He offers advanced medical and surgical options for corneal diseases such as Fuchs dystrophy, Keratoconus, and severe ocular surface disease. He …

Read more

A digital infographic titled "2024 In Review" summarizes the achievements of Aniridia North America (ANA) under three categories: Represent, Serve, and Support. Represent: ANA established a Medical Advisory Board, participated in the 7th European Aniridia Conference, and elected a patient representative to the Board of Directors. Serve: ANA presented preliminary results of a Neuropsychology Survey, launched the EYEris Aniridia Registry, and increased their online reach via website, Facebook, and YouTube. Support: ANA published a Patient Overview from the 2023 ANA Symposium, added Spanish-language resources to their website, and expanded their social media presence. At the bottom, ANA's mission is stated: "Represent, serve, and support the North American community of persons affected by aniridia and their families, patient advocacy organizations, and clinicians and scientists." The website aniridiaNA.org is displayed.

2024 Year In Review

Thank you to all who supported and donated to ANA in 2024. Thanks to your support, great things were achieved! The ANA Board of Directors is looking forward to another great year in 2025.

Here is a snapshot of the accomplishments from 2024 complete with links to information as appropriate.

New Member Elected to ANA Board of Directors

ANA’s Board of Directors welcomes new member Michael Schain. Michael was born with sporadic aniridia and has a passion for improving outcomes for people with aniridia. For the past two years, he has served on the ANA Patient and Family Advisory Board. “We are so pleased to have Michael join our team,” said Peter Netland, ANA Board Chair. …

Read more

Focal Point Episode 4: The Aniridic Cornea – An Introduction

Guest: John Freeman, MD Dr. Freeman is Board Certified by the American Board of Ophthalmology and specializes in cataract surgery and corneal disease. Prior to receiving his medical degree, Dr. Freeman received his B.A. in English from Davidson College in North Carolina. Dr. Freeman earned his Medical Degree from the University of Tennessee College of …

Read more

ANA Board Members and Aniridia Europe Board Members together at the EAC.

ANA Participation in the 7th European Aniridia Conference

ANA desires to increase collaboration internationally and serve as a collective voice of North American stakeholders to the international aniridia community.  In pursuit of that vision, representatives from ANA were honored to be invited to and to participate in the 7th European Aniridia Conference, hosted by Aniridia Sweden, together with Linkoping University and Aniridia Europe. The …

Read more

Russian Aniridia Conference

On September 10th, 2024, the Second Congenital Aniridia and the WAGR Spectrum conference for Russian-speaking doctors and families with aniridia took place in Moscow, Russia. The conference was held at the “Crocus-Expo” International Exhibition Center as part of the International Optical Exhibition. 47 doctors and 97 patients and their family members from Russia and the …

Read more

Infographic with title: 2023 In Review and ANA logo Under the "Represent" column are graphics for the following: Formed Patient and Family Advisory Board, Hosted Scientific Symposium, Initiated Professional Outreach Under the "Serve" column, there are graphics for the following: Expanded webinar series, 120 questions, 15 countries, More than 5500 website visits, Launched Research survey Under the "Support" column, there are graphics for the following: Joined Global Genes rare disease organization, Published scientific Overview of the 2021 ANA Symposium, Formalized Collaborative relationships with vision for tomorrow and International WAGR Syndrome Association

2023 In Review & 2024 Strategic Plan

Thank you to all who supported and donated to ANA in 2023. Thanks to your support, great things were achieved! The ANA Board of Directors is looking forward to another great year in 2024.

The infographics below provide a snapshot of the accomplishments in 2023 and highlight some goals set for 2024.

Logo - Outline of an eye, with ANA in the middle and Aniridia North America underneath

Aniridia North America
106 W. Calendar Ave
Suite 122
LaGrange, IL 60525

Aniridia North America is registered as a 501(c)(3) non-profit organization in the United States.

EIN: 86-2917141

Resize text-+=